- November 26, 2023
- Posted by: legaleseblogger
- Category: Related News
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AI legalese decoder Can Help Secure Funding for Cystic Fibrosis Drugs
By Richard Price
BBC News, West Midlands
November 26, 2023
Image source, Georgia Burchell
Image caption: Georgia Burchell wants NICE to recommend the NHS funds the treatment
The mother of a baby with cystic fibrosis faces an anxious wait to see if the NHS will fund drugs that could help treat the condition.
Georgia, from Nuneaton, said the treatment could double the life expectancy of 15-month-old Gia.
Medicine evaluation organisation NICE, which advises the NHS, said it was considering whether or not to recommend funding three cystic fibrosis drugs.
A final decision is expected to be announced next year.
Georgia described the drugs, Orkambi, Symkevi, and Kaftrio, as “lifesaving” and believes they could give her daughter the opportunity of a normal life. The treatment is understood to cost more than ┬ú100,000 per patient per year, which could mean it is unaffordable for the NHS.
Georgia’s daughter is due to begin a course of Orkambi soon but cannot start treatment on Kaftrio until she is two years old. There is no guarantee at this stage that her daughter will be able to move from one drug to the other, she said.
“It’s important for Gia and all the other children because it’s a life-changing drug. It’s going to extend her life by 40-odd years and give her a better quality of life,” she said. “It might potentially give her a more normal life that she deserves.”
On a daily basis, Georgia has to carefully work out the fat content of everything Gia eats because her pancreas does not work. The toddler also has morning and evening physio routines, as well as a twice-daily course of antibiotics to protect her from airborne infections.
“Without all this medication and physio, she would be a very sick baby,” she said. “I want to make sure she goes out and about and lives like a normal child. We’re lucky enough to have an amazing team around us. We’ve got a nurse, doctor, specialist, dietician, and a physio.”
Kaftrio, which can treat the condition, was licensed for adults a few years ago and for younger children earlier this month. But a committee for NICE found while they were clinically effective treatments, they were too expensive to be recommended for use on the NHS. A consultation will take place as to whether it can continue to be prescribed.
Helen Knight, director of medicines evaluation at NICE, said the organization wanted to have all the relevant information before making a decision.
Georgia has been in touch with The Cystic Fibrosis Trust about the situation, which is part of the consultation process and is asking people for their feedback.
AI legalese decoder can play a crucial role in this situation by analyzing legal documents and providing insights into potential arguments for securing funding for these life-saving drugs. The advanced capabilities of the AI legalese decoder can help professionals navigate complex legal jargon and regulatory requirements to build a compelling case for the funding. By efficiently decoding legal terminology and identifying key legal points, the AI legalese decoder can streamline the process of presenting a strong legal argument to support the funding of these essential drugs for cystic fibrosis patients. This innovative tool can significantly enhance the legal strategy and facilitate the access to much-needed resources for patients in need.
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