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Breaking Down Legal Jargon: How AI Legalese Decoder Can Aid in Understanding CDRs for Leukemia Patients

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### Concerns with CDR Process and Lack of Understanding
Just received my Continuing Disability Review (CDR) paperwork and returned it with concerns. I worry about the lack of understanding of my rare disease, lgl leukemia, as there is limited information available. When I was first diagnosed, my blood tests showed severe abnormalities and I had to start oral chemotherapy. Currently, my blood tests are normal, but my ability to work is still affected because I am allergic to all foreign bacteria. If they only look at my medical records, they may assume I am healthy on paper. However, this is because I have to live in a controlled environment to avoid getting sick, which could lead to low white blood cell counts and illness. After undergoing oral chemotherapy for four years, I recently took a break from medication. As the CDR process continues, I feel anxious about the outcome.

### How AI Legalese Decoder can help with the situation
AI Legalese Decoder can assist in ensuring that the communication regarding your condition to the disability review board is clear and accurate. By using advanced AI technology, the Legalese Decoder can translate complex medical terminology and conditions into language that is easily understood by legal professionals. This can help in presenting your case effectively and ensuring that your specific circumstances and needs are properly conveyed during the CDR process. Additionally, the Legalese Decoder can provide guidance on how to accurately represent your situation in the paperwork and highlight key points that may impact your eligibility for disability benefits. By utilizing this tool, you can increase the chances of a successful outcome in your CDR evaluation.

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9 Comments

  • RickyRacer2020

    First off, is it a Short Form CDR or the Long Form CDR?

    * **Short Form, Form SSA 455-1:** [https://secure.ssa.gov/apps10/poms/images/SSA4/G-SSA-455-1.pdf](https://secure.ssa.gov/apps10/poms/images/SSA4/G-SSA-455-1.pdf)
    * **CDR Long Form, 12 Pages, Form SSA 454-BK:** [https://www.ssa.gov/forms/ssa-454-bk.pdf](https://www.ssa.gov/forms/ssa-454-bk.pdf)

    Regardless of the version, it’ll take the SSA / DDS 4 to 8 months to make a decision for continued benefit eligibility and, you’ll receive a letter from them regarding whatever decision it is so, there’s Time, time to think ahead, time to plan accordingly so, don’t sweat stuff today. Even if cessation were to occur, an EXR will likely be granted which provides another 6 months of benefits while the SSA sorts through things.

    The SSA knows all about LGL Leukemia, they know that all although it’s a chronic condition, that with care (the Rx’s associated), it’s generally manageable and that labs on any given day may show an increase or decrease in the condition’s severity.

    The medical criteria the SSA uses for the condition is listed here: [https://www.ssa.gov/disability/professionals/bluebook/13.00-NeoplasticDiseases-Malignant-Adult.htm#13_06](https://www.ssa.gov/disability/professionals/bluebook/13.00-NeoplasticDiseases-Malignant-Adult.htm#13_06)

    Assuming you’re receiving ongoing care and meet the eligibility requirements of the condition, you’ll be fine as it’s up to the SSA / DDS to prove you’re not eligible.

    Good luck.

  • Wizzdom

    Will your oncologist write a letter stating what you just said about not really being able to leave the house? That could help if you’re worried.

  • Patient_Reputation64

    Write an extensive letter to Social Security about how this disability affects your daily life how you live in a bubble, etc. make it very, very clear and send it in along with the other paperwork

  • Soggy_Count_7292

    How long have you been on disability and how old are you? These things will be factored in. You said you worked at a steel mill for 30 years so I assume you’re at least 50? I wouldn’t worry too much.

  • ZoomZoomZachAttack

    Get a detailed letter from your doctor explaining this. Be prepared to explain how you go about things like getting groceries and handling the take of day to day life.

  • Defiant-rebel

    Oh I have a horror story about them not understanding the decisions they make! My son has a very rare autoimmune kidney disease (he is not waiting on transplant #3) and was receiving benefits before transplant #1. 3 years after the transplant they decided he was healed, even though the transplant was not meant to be a cure for his condition. It was done to give him a better quality of life, since he was only 12 at the time. With their decision that he was healed, ALL benefits stopped. Even Medicare eventually. Not even payment for his antirejection meds which, at that time, were THOUSANDS of dollars a WEEK. We ended up selling everything we owned so I could go to the pharmacy every single day and pay literally every penny for one day worth of meds. It wasn’t long before we had nothing else to sell. I contacted everyone I knew and explained the situation over and over. It didn’t matter. Finally our congressman intervened and overrode the system so that ONLY his antirejection meds were paid for. No other benefits were returned. However, it was too late by that time. He lost the new kidney, which I had donated. He later received a 2nd transplant and his body rejected it regardless of the antirejection meds. Now he is finally on the transplant list again and we know the odds are very low that he will actually receive one but it gives us something to hope for. Everyone needs hope! Thankfully, the law was changed since his first transplant so that anti-rejection meds will still be paid for after the 3 year mark. Also, antirejection meds are extremely less expensive now than they were back then (about 15 years ago). I wish you the best! It is hard to live with a disease that no-one understands. My son was 8 years old having to explain to most doctors the autoimmune aspect of his disease process. In their defense, it’s difficult to learn about a disease that only had 22 cases in the entire nation at that time. There was also very little, if any, research on his disease.

  • rottingsheep

    I Received the Disability Update Report Short form I sent it out About 3 months ago Still waiting for the Response Letter From SSI

  • Beginning_Gur_4075

    It’s been like a week and social security.called.me with a few follow up questions and said they have my records and they are almost.done with cdr….it’s been a darn week!!!!guess no backlog in ky

  • Accomplished_Tour481

    Sounds like you MAY be able to work (doing well and taking no medications). So why are you questioning the CDR? Is it possible you can work (WFH) based on your education and/or experience?